prikaz prve stranice dokumenta Real-world operation of multiple sclerosis centres in Central-Eastern European countries covering 107 million inhabitants
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Scientific paper - Original scientific paper
Real-world operation of multiple sclerosis centres in Central-Eastern European countries covering 107 million inhabitants
Multiple Sclerosis and Related Disorders, 69 (2023); 104406. https://doi.org/10.1016/j.msard.2022.104406
Kokas, Zsófia; Járdánházy, Anett; Sandi, Dániel; Biernacki, Tamás; Fricska-Nagy, Zsanett; Füvesi, Judit; Bartosik-Psujek, Halina; Kes, Vanja Basic; Berger, Thomas; Berthele, Achim; Drulovic, Jelena; Hemmer, Bernhard; Horakova, Dana; Ledinek, Alenka Horvat; Havrdova, Eva Kubala; Magyari, Melinda; Rejdak, Konrad; Tiu, Cristina; Turcani, Peter; Klivényi, Péter; Kincses, Zsigmond Tamás; Vécsei, László; Bencsik, Krisztina More authors...

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Kokas, Z., Járdánházy, A., Sandi, D., Biernacki, T., Fricska Nagy, Z., Füvesi, J. ... Bencsik, K. (2023). Real-world operation of multiple sclerosis centres in Central-Eastern European countries covering 107 million inhabitants. Multiple Sclerosis and Related Disorders, 69.. doi: 10.1016/j.msard.2022.104406

Kokas, Zsófia, et al. "Real-world operation of multiple sclerosis centres in Central-Eastern European countries covering 107 million inhabitants." Multiple Sclerosis and Related Disorders, vol. 69, 2023. https://doi.org/10.1016/j.msard.2022.104406

Kokas, Zsófia, Anett Járdánházy, Dániel Sandi, Tamás Biernacki, Zsanett Fricska Nagy, Judit Füvesi, Halina Bartosik Psujek, et al. "Real-world operation of multiple sclerosis centres in Central-Eastern European countries covering 107 million inhabitants." Multiple Sclerosis and Related Disorders 69 (2023). https://doi.org/10.1016/j.msard.2022.104406

Kokas, Z., et al. (2023) 'Real-world operation of multiple sclerosis centres in Central-Eastern European countries covering 107 million inhabitants', Multiple Sclerosis and Related Disorders, 69. doi: 10.1016/j.msard.2022.104406

Kokas Z, Járdánházy A, Sandi D, Biernacki T, Fricska Nagy Z, Füvesi J, and sur.. Real-world operation of multiple sclerosis centres in Central-Eastern European countries covering 107 million inhabitants. Multiple Sclerosis and Related Disorders [Internet]. 2023 January [cited 2024 November 18];69. doi: 10.1016/j.msard.2022.104406

Z. Kokas, et al., "Real-world operation of multiple sclerosis centres in Central-Eastern European countries covering 107 million inhabitants", Multiple Sclerosis and Related Disorders, vol. 69, January 2023. [Online]. Available at: https://urn.nsk.hr/urn:nbn:hr:220:536164. [Accessed: 18 November 2024]

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Metadata
Title (english)Real-world operation of multiple sclerosis centres in Central-Eastern European countries covering 107 million inhabitants
AuthorZsófia Kokas
AuthorAnett Járdánházy
AuthorDániel Sandi
AuthorTamás Biernacki
AuthorZsanett Fricska-Nagy
AuthorJudit Füvesi
AuthorHalina Bartosik-Psujek
AuthorVanja Basic Kes
AuthorThomas Berger
AuthorAchim Berthele
AuthorJelena Drulovic
AuthorBernhard Hemmer
AuthorDana Horakova
AuthorAlenka Horvat Ledinek
AuthorEva Kubala Havrdova
AuthorMelinda Magyari
AuthorKonrad Rejdak
AuthorCristina Tiu
AuthorPeter Turcani
AuthorPéter Klivényi
AuthorZsigmond Tamás Kincses
AuthorLászló Vécsei
AuthorKrisztina Bencsik
Author's institution(Sestre milosrdnice University Hospital Center)
Scientific / art field,
discipline and subdiscipline		BIOMEDICINE AND HEALTHCARE
Clinical Medical Sciences
Neurology
Abstract (english)
Background: In 2018 multiple sclerosis (MS) care unit (MSCU) recommendations were defined. Nevertheless, the information on MS care, and whether MS centres fulfil the international recommendation is limited. Thus our objectives were to assess whether centres meet the MSCU recommendations and gain a comprehensive overview of MS care in Central-Eastern European countries. Methods: A self-report questionnaire assessing aspects of the MSCU recommendations, disease-modifying therapy (DMT) and registry use and the patient number was assembled and sent to nine Central-Eastern European countries. Furthermore, one Danish and one German centre were contacted as a reference. Results: In 9/9 countries, MS care was pursued in centres by MS neurologists and MS nurses. In Austria and the Czech Republic, management of MS was conducted under strict regulations displaying a referral centre system, fundamentally similar to but independent of the MSCU criteria. Several centres fulfilled all aspects of the MSCU criteria, while others had similar insufficiencies consisting of a speech therapist, continence, pain and spasticity specialist, neuro-ophthalmologist, and oto-neurologist. In 9/9 countries, DMTs were reimbursed. However, some centres did not provide every available DMT. A national registry was available in 4/9 countries with mandatory registry use only in Austria and the Czech Republic. Conclusion: In countries where MSCU recommendations are not fulfilled, a strictly regulated centre system similar to the Austrian and Czech model with a registry-based quality control might ensure appropriate care for people with MS.
Keywords (english)
Languageenglish
Publication typeScientific paper - Original scientific paper
Publication statusPublished
Peer reviewPeer review
Publication versionPublished version
Journal titleMultiple Sclerosis and Related Disorders
Numberingvol. 69, 104406
p-ISSN2211-0348
DOIhttps://doi.org/10.1016/j.msard.2022.104406
URN:NBNurn:nbn:hr:220:536164
Publication2023-01
Document URLhttps://linkinghub.elsevier.com/retrieve/pii/S2211034822009105
Type of resourceText
Access conditionsInstitutional access
Terms of useLicence In copyright icon
Created on2024-06-24 10:08:56