prikaz prve stranice dokumenta Real-world operation of multiple sclerosis centres in Central-Eastern European countries covering 107 million inhabitants
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Real-world operation of multiple sclerosis centres in Central-Eastern European countries covering 107 million inhabitants
Multiple Sclerosis and Related Disorders, 69 (2023); 104406. https://doi.org/10.1016/j.msard.2022.104406
Kokas, Zsófia; Járdánházy, Anett; Sandi, Dániel; Biernacki, Tamás; Fricska-Nagy, Zsanett; Füvesi, Judit; Bartosik-Psujek, Halina; Kes, Vanja Basic; Berger, Thomas; Berthele, Achim; Drulovic, Jelena; Hemmer, Bernhard; Horakova, Dana; Ledinek, Alenka Horvat; Havrdova, Eva Kubala; Magyari, Melinda; Rejdak, Konrad; Tiu, Cristina; Turcani, Peter; Klivényi, Péter; Kincses, Zsigmond Tamás; Vécsei, László; Bencsik, Krisztina Više autora...

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Kokas, Z., Járdánházy, A., Sandi, D., Biernacki, T., Fricska Nagy, Z., Füvesi, J. ... Bencsik, K. (2023). Real-world operation of multiple sclerosis centres in Central-Eastern European countries covering 107 million inhabitants. Multiple Sclerosis and Related Disorders, 69.. doi: 10.1016/j.msard.2022.104406

Kokas, Zsófia, et al. "Real-world operation of multiple sclerosis centres in Central-Eastern European countries covering 107 million inhabitants." Multiple Sclerosis and Related Disorders, vol. 69, 2023. https://doi.org/10.1016/j.msard.2022.104406

Kokas, Zsófia, Anett Járdánházy, Dániel Sandi, Tamás Biernacki, Zsanett Fricska Nagy, Judit Füvesi, Halina Bartosik Psujek, et al. "Real-world operation of multiple sclerosis centres in Central-Eastern European countries covering 107 million inhabitants." Multiple Sclerosis and Related Disorders 69 (2023). https://doi.org/10.1016/j.msard.2022.104406

Kokas, Z., et al. (2023) 'Real-world operation of multiple sclerosis centres in Central-Eastern European countries covering 107 million inhabitants', Multiple Sclerosis and Related Disorders, 69. doi: 10.1016/j.msard.2022.104406

Kokas Z, Járdánházy A, Sandi D, Biernacki T, Fricska Nagy Z, Füvesi J, i sur.. Real-world operation of multiple sclerosis centres in Central-Eastern European countries covering 107 million inhabitants. Multiple Sclerosis and Related Disorders [Internet]. 01.2023. [pristupljeno 08.12.2024.];69. doi: 10.1016/j.msard.2022.104406

Z. Kokas, et al., "Real-world operation of multiple sclerosis centres in Central-Eastern European countries covering 107 million inhabitants", Multiple Sclerosis and Related Disorders, vol. 69, Siječanj 2023. [Online]. Dostupno na: https://urn.nsk.hr/urn:nbn:hr:220:536164. [Citirano: 08.12.2024.]

Za citiranje koristite ovu mrežnu adresu: https://urn.nsk.hr/urn:nbn:hr:220:536164
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Naslov (engleski)Real-world operation of multiple sclerosis centres in Central-Eastern European countries covering 107 million inhabitants
AutorZsófia Kokas
AutorAnett Járdánházy
AutorDániel Sandi
AutorTamás Biernacki
AutorZsanett Fricska-Nagy
AutorJudit Füvesi
AutorHalina Bartosik-Psujek
AutorVanja Basic Kes
AutorThomas Berger
AutorAchim Berthele
AutorJelena Drulovic
AutorBernhard Hemmer
AutorDana Horakova
AutorAlenka Horvat Ledinek
AutorEva Kubala Havrdova
AutorMelinda Magyari
AutorKonrad Rejdak
AutorCristina Tiu
AutorPeter Turcani
AutorPéter Klivényi
AutorZsigmond Tamás Kincses
AutorLászló Vécsei
AutorKrisztina Bencsik
Autorova ustanova(Klinički bolnički centar Sestre milosrdnice)
Znanstveno / umjetničko
područje, polje i grana		BIOMEDICINA I ZDRAVSTVO
Kliničke medicinske znanosti
Neurologija
Sažetak (engleski)
Background: In 2018 multiple sclerosis (MS) care unit (MSCU) recommendations were defined. Nevertheless, the information on MS care, and whether MS centres fulfil the international recommendation is limited. Thus our objectives were to assess whether centres meet the MSCU recommendations and gain a comprehensive overview of MS care in Central-Eastern European countries. Methods: A self-report questionnaire assessing aspects of the MSCU recommendations, disease-modifying therapy (DMT) and registry use and the patient number was assembled and sent to nine Central-Eastern European countries. Furthermore, one Danish and one German centre were contacted as a reference. Results: In 9/9 countries, MS care was pursued in centres by MS neurologists and MS nurses. In Austria and the Czech Republic, management of MS was conducted under strict regulations displaying a referral centre system, fundamentally similar to but independent of the MSCU criteria. Several centres fulfilled all aspects of the MSCU criteria, while others had similar insufficiencies consisting of a speech therapist, continence, pain and spasticity specialist, neuro-ophthalmologist, and oto-neurologist. In 9/9 countries, DMTs were reimbursed. However, some centres did not provide every available DMT. A national registry was available in 4/9 countries with mandatory registry use only in Austria and the Czech Republic. Conclusion: In countries where MSCU recommendations are not fulfilled, a strictly regulated centre system similar to the Austrian and Czech model with a registry-based quality control might ensure appropriate care for people with MS.
Ključne riječi (engleski)
Jezikengleski
Vrsta publikacijeZnanstveni rad - Izvorni znanstveni rad
Status objaveObjavljen
Vrsta recenzijeRecenziran
Verzija publikacijeObjavljena verzija rada (izdavačev PDF)
Naslov časopisaMultiple Sclerosis and Related Disorders
Brojčani podacivol. 69, 104406
p-ISSN2211-0348
DOIhttps://doi.org/10.1016/j.msard.2022.104406
URN:NBNurn:nbn:hr:220:536164
Datum objave publikacije2023-01
URL dokumentahttps://linkinghub.elsevier.com/retrieve/pii/S2211034822009105
Vrsta resursaTekst
Prava pristupaInstitucijski pristup
Uvjeti korištenjaIkona licence Zaštićeno autorskim pravom.
Datum i vrijeme pohrane2024-06-24 10:08:56